EUROlinkCAT protocol for a European population-based data linkage study investigating the survival, morbidity and education of children with congenital anomalies.
Joan K MorrisEster GarneMaria A LoaneIngeborg BarišićJames DensemAnna Latos-BieleńskaAmanda NevilleAnna PieriniJudith RankinAnke RissmannHermien Evelien Klaaske de WalleJoachim TanJoanne Emma GivenHugh Claridgenull nullPublished in: BMJ open (2021)
The CDM and associated documentation, including linkage and standardisation procedures, will be available post-EUROlinkCAT thus facilitating future local, national and European-level analyses to improve healthcare. Recommendations to improve the accuracy of routinely collected data will be made.Findings will provide evidence to inform parents, health professionals, public health authorities and national treatment guidelines to optimise diagnosis, prevention and treatment for these children with a view to reducing health inequalities in Europe.