"I turned in my man card": A qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis.
Caroline A FlureyJohn D PaulingLesley Ann SaketkooChristopher P DentonPaul GaldasDinesh KhannaAdrian WilliamsMichael HughesPublished in: Rheumatology (Oxford, England) (2022)
These novel data suggest SSc impacts male patients' masculine identity and roles, and although they will accept practical help, they may mask the full emotional impact. Sex and intimacy are important overlooked issues with erectile dysfunction often not discussed at diagnosis. Further research should develop a self-management intervention for men with rheumatic diseases with a combination of disease specific and common core components.
Keyphrases
- systemic sclerosis
- interstitial lung disease
- end stage renal disease
- newly diagnosed
- ejection fraction
- chronic kidney disease
- randomized controlled trial
- middle aged
- depressive symptoms
- mental health
- prognostic factors
- electronic health record
- peritoneal dialysis
- patient reported outcomes
- positive airway pressure
- idiopathic pulmonary fibrosis
- data analysis