Connect-ROD - development and qualitative evaluation of a community-based group intervention to support well-being in patients with a rare or orphan disease.
Cécile BardonMarie-Éve RiouxMélina RivardFloryana-Maria Viquez PorrasJulie ZakyPublished in: Orphanet journal of rare diseases (2024)
It is recommended that Connect-ROD is evaluated on a larger scale. It seems promising to support various AP-ROD who live with the complex psychosocial consequences of their disease.