"I didn't want to be in charge and yet I was": Bereaved caregivers' accounts of providing home care for family members with advanced cancer.
Shan MohammedNadia SwamiAshley PopeGary M RodinBreffni HannonRinat NissimSarah HalesCamilla ZimmermannPublished in: Psycho-oncology (2018)
Caregivers were often thrust into assuming control in order to compensate for deficiencies in formal palliative home care services. Policies, quality indicators, and guidelines are needed to ensure the provision of comprehensive, interdisciplinary home palliative care.