The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study).

Sylvia von MackensenLinda Myrin WestessonKaan KavakliAnna KlukowskaCarmen EscuriolaNanda UitslagerCristina SantoroMike HollandKate Khair

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2019)

This "snapshot" analysis of burden related to caring for a child with haemophilia across Europe revealed the greatest burdens are economic, including days lost from work, and things that a child cannot do, impacting on both child and caregiver.

Keyphrases

mental health
young adults
palliative care