Cohort profile: the National Congenital Anomaly Registration Dataset in England.
Jennifer M BroughanBen WreyfordDanielle MartinGabriella MelisKay RandallEwoma ObaroJohn BroggioNicholas AldridgeSylvia StoianovaChloe JohnsonDonna GibbardSarah StevensKate M FlemingPublished in: BMJ open (2024)
NCARDRS provides a valuable resource for the understanding of the epidemiology, surveillance, prevention and treatment of CAs. Currently, approximately 21 000 new registrations of babies or fetuses with suspected or confirmed CAs are added each year. Identifiers are collected, enabling linkage to routinely collected healthcare and population statistics, further enhancing the value of the data.