Care practices of specialized outpatient pediatric palliative care teams in collaboration with parents: Results of participatory observations.
Dania SchuetzeCornelia PloegerMichaela HachHannah SeippKatrin KussStefan BösnerFerdinand M GerlachMarjan van den AkkerAntje ErlerJennifer EnglerPublished in: Palliative medicine (2021)
Care practices in pediatric palliative care require time, communication skills, and a high level of psychosocial competence, to develop a trusting, collaborative relationship with parents. This should be taken into consideration when establishing pediatric palliative care structures, preparing guidelines, training staff, and deciding upon appropriate remuneration.