Comparing the Measurement Properties and Preferability of Patient-reported Outcome Measures in Pediatric Rheumatology: PROMIS vs CHAQ.
Joshua CraigBrian M FeldmanLynn SpiegelSaunya DoverPublished in: The Journal of rheumatology (2020)
The PROMIS pain interference, mobility, and physical activity measures improve in some areas where the CHAQ is weak: they do not suffer from ceiling effects, and patients prefer the PROMIS tools. More work is needed to determine the correlation and responsiveness of the PROMIS tools to changes in disease activity over time before they should be widely adopted for clinical use.
Keyphrases
- patient reported outcomes
- patient reported
- disease activity
- physical activity
- rheumatoid arthritis
- systemic lupus erythematosus
- end stage renal disease
- juvenile idiopathic arthritis
- rheumatoid arthritis patients
- ejection fraction
- chronic pain
- ankylosing spondylitis
- chronic kidney disease
- newly diagnosed
- peritoneal dialysis
- body mass index