Patient Values and Preferences Regarding Prognostic Counseling in Isolated REM Sleep Behavior Disorder.

Thomas R GossardLuke N TeigenSeeley YooPaul C TimmJack T JagielskiNoor BibiJohn C FeemsterTyler SteeleDiego Zaquera CarvalhoMithri R JunnaMelissa C LipfordMaja Tippmann PeikertLaurene LeClair-VisonneauStuart J McCarterBradley F BoeveMichael H SilberJessica HirschRichard R SharpErik K St Louis

Published in: Sleep (2022)

Most iRBD patients indicated strong preferences for disclosure of NDD prognostic risk and indicated that prognostic information was important for family discussions and future life planning. Future broader surveys and qualitative studies of clinic-based and ultimately community dwelling iRBD patients' values and preferences are needed to guide appropriately tailored and individualized prognostic counseling approaches following iRBD diagnosis.

Keyphrases

end stage renal disease
newly diagnosed
ejection fraction
chronic kidney disease
prognostic factors
healthcare
smoking cessation
physical activity
patient reported outcomes
current status
cross sectional
decision making
case report
depressive symptoms
sleep quality
antiretroviral therapy