A retrospective study of needs and interventions among patients with myotonic dystrophy type 1 in Denmark referred to rehabilitation in the period 2000-2019.

Kristin Allergodt Charlotte HandbergAsger FrostUlla Werlauff

Published in: Journal of evaluation in clinical practice (2022)

All subgroups of patients with DM1 had a substantial number of needs and interventions related to coordinating and navigating within the healthcare system. The subgroup of patients with congenital DM1 had the most needs and interventions compared to the other subgroups.

Keyphrases

physical activity
early onset
randomized controlled trial
clinical trial
metabolic syndrome
insulin resistance
duchenne muscular dystrophy
study protocol