Gene therapy: perspectives from young adults with Leber's congenital amaurosis.
Melanie P NapierKavin SelvanRobin Z HayeemsCheryl ShumanDavid ChitayatJoanne E SutherlandMegan A DayElise HeonPublished in: Eye (London, England) (2021)
This study highlights the complex factors involved in gene-therapy-related decision-making and acts as a proponent for adopting patient-centred care strategies when counselling individuals considering gene therapy or clinical trial participation.
Keyphrases
- physical activity
- gene therapy
- young adults
- clinical trial
- decision making
- healthcare
- palliative care
- case report
- quality improvement
- phase ii
- open label
- randomized controlled trial
- study protocol
- pain management
- hiv testing
- hepatitis c virus
- hiv infected
- affordable care act
- health insurance
- phase iii
- men who have sex with men