Parents' experiences of participating in the Small Step early intervention program for infants at high risk of cerebral palsy: essential components and potential dilemmas.
Ann-Kristin Gunnes ElvrumAnn-Christin EliassonSilja Berg KårstadRannei SætherSylvia SøderstrømPublished in: Disability and rehabilitation (2024)
Our findings provide insights into what kind of support parents prefer and dilemmas professionals should be aware of when providing early intervention to families of infants at high risk of CP. Parents appreciated being involved as equal partners and receiving home-based guidance. Acknowledging grief and sorrow as natural reactions and fostering open discussions about expectations seem essential in addressing families' individual needs.