A scoping review of 'Pacing' for management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): lessons learned for the long COVID pandemic.
Nilihan E M Sanal-HayesMarie MclaughlinLawrence D HayesJacqueline Louise MairJane OrmerodDavid CarlessNatalie HilliardRachel MeachJoanne IngramNicholas F SculthorpePublished in: Journal of translational medicine (2023)
Highly variable study designs and outcome measures, allied to poor to fair methodological quality resulted in heterogenous findings and highlights the requirement for more research examining pacing. Looking to the long COVID pandemic, our results suggest future studies should be RCTs utilising objectively quantified digitised pacing, over a longer duration of examination (i.e. longitudinal studies), using the core outcome set for patient reported outcome measures. Until these are completed, the literature base is insufficient to inform treatment practises for people with ME/CFS and long COVID.