What do family caregivers know about palliative care? Results from a national survey.
James Nicholas Dionne-OdomKatherine A OrnsteinErin E KentPublished in: Palliative & supportive care (2020)
One-half of family caregivers of adults with serious chronic illness have never heard of palliative care. Even among those who had heard of palliative care, the majority do not distinguish it from hospice care and death. Given the role family caregivers may play in decisions to access palliative care, public messaging efforts are needed to clarify palliative care services in a way that is patient- and family-centered.