Patients and informal caregivers in the lead: a qualitative study on the experiences of patients, informal caregivers, and healthcare professionals with involvement in treatment, e-health and self-management programs.
Matthijs Hugo BosveldAnne G M SmitsHelena J M M MertensMichel J J M van ZandvoortWalther N K A van MookMarloes Amantia van BokhovenPublished in: BMC health services research (2024)
Stakeholders' experiences with the Academy for Patients and Informal caregivers indicate that participation contributes to development of self-management, whilst also improving working conditions, reducing the appeal to formal care and advancing equity in healthcare. The burden for patients and informal caregivers is to be considered in future developments.