Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for developing and testing a complex intervention.

Louise Engelbrecht BuurJeanette FinderupHenning SøndergaardMichell KannegaardJens Kristian MadsenHilary Louise Bekker

Published in: Pilot and feasibility studies (2022)

This research will provide evidence informing the content and design of a shared decision-making intervention supporting patient-professional planning of end-of-life care for patients with end-stage kidney disease, and assessing its acceptability and feasibility when integrated within Danish kidney units. This research is the first step to innovating the involvement of patients in end-of-life care planning with kidney professionals.

Keyphrases

randomized controlled trial
ejection fraction
end stage renal disease
newly diagnosed
prognostic factors
case report
patient reported outcomes