Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study.
Melissa K CousinoVictoria A MillerCynthia SmithKaren UzarkRay LoweryNichole RottachElizabeth D BlumeKurt R SchumacherPublished in: Palliative medicine (2019)
Although young people are involved in the decision to pursue heart transplantation, little attention is paid to involving them in discussions regarding end-of-life decision making in a manner that is consistent with individual preferences.