Service evaluation suggests variation in clinical care provision in adults with congenital adrenal hyperplasia in the UK and Ireland.
Lauren Madden DoyleSyed Faisal AhmedJessica DavisSue ElfordYasir S ElhassanLynette JamesNeil LawrenceSofia LlahanaGrace OkoroD Aled ReesJeremy W TomlinsonMichael W O'ReillyNils P KronePublished in: Clinical endocrinology (2024)
Differences in current management of CAH continue to exist. It appears crucial to objectify if different approaches result in different long-term outcomes. New studies such as CaHASE2, incorporating standardised minimum datasets including replacement therapies and monitoring strategies as well as longitudinal data collection, are now needed to define best-practice and standardise care.