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Service evaluation suggests variation in clinical care provision in adults with congenital adrenal hyperplasia in the UK and Ireland.

Lauren Madden DoyleSyed Faisal AhmedJessica DavisSue ElfordYasir S ElhassanLynette JamesNeil LawrenceSofia LlahanaGrace OkoroD Aled ReesJeremy W TomlinsonMichael W O'ReillyNils P Krone
Published in: Clinical endocrinology (2024)
Differences in current management of CAH continue to exist. It appears crucial to objectify if different approaches result in different long-term outcomes. New studies such as CaHASE2, incorporating standardised minimum datasets including replacement therapies and monitoring strategies as well as longitudinal data collection, are now needed to define best-practice and standardise care.
Keyphrases
  • healthcare
  • palliative care
  • quality improvement
  • cross sectional
  • primary care
  • mental health
  • pain management
  • affordable care act
  • big data
  • rna seq