Towards an ICF-based self-report questionnaire for people with skeletal dysplasia to study health, functioning, disability and accessibility.

Heidi AnttilaSusanna TallqvistMinna MuñozSanna Leppäjoki-TiistolaOuti MäkitieSinikka Hiekkala

Published in: Orphanet journal of rare diseases (2021)

The content of the questionnaire proved to be sufficiently valid for people with skeletal dysplasia. It can be used to explore their health, functioning, disability and accessibility to develop care and rehabilitation policies, to plan services and to provide information to various parties involved.

Keyphrases

healthcare
public health
mental health
health information
multiple sclerosis
cross sectional
psychometric properties
primary care
palliative care
health promotion
patient reported
social media
human health