Living with a central nervous system (CNS) tumor: findings on long-term survivorship from the NIH Natural History Study.
James L RogersElizabeth VeraAlvina AcquayeNicole BricenoVarna JammulaAmanda L KingHeather LeeperMartha M QuezadoJavier Gonzalez AlarconLisa BorisEric BurtonOrieta CelikuAnna ChoiAlexa ChristSonja CrandonEwa GrajkowskaNicole LeggieroNicole LolloMarta Penas-PradoJennifer ReyesChristine SiegelBrett J TheelerMichael TimmerKathleen WallJing WuKenneth D AldapeMark R GilbertTerri S ArmstrongPublished in: Neuro-oncology practice (2021)
Findings indicate LTS fall into distinct cohorts with no significant symptoms or very high symptom burden, regardless of tumor grade or mutational profile. These LTS data demonstrate the need for survivorship care programs and future studies to explore the symptom trajectory of all CNS tumor patients for prevention and early interventions.