Symptom burden of people with progressive ataxia, and its wider impact on their friends and relatives: a cross-sectional study.
Anja LowitJulie GreenfieldEmily CuttingRuby WallisMarios HadjivassiliouPublished in: AMRC open research (2021)
This study begins to provide information that can be used in further research to explore the needs of people with ataxia and their carers, friends, and relatives. Such research will support treatment trial design, ensuring patients' needs are considered, help to tailor support services to their needs, and ensure health care professionals have the necessary skills to fully address them.