Development and validation of a patient-reported outcome measure for systemic sclerosis: the EULAR Systemic Sclerosis Impact of Disease (ScleroID) questionnaire.
Mike Oliver BeckerRucsandra DobrotaAlexandru GaraimanRudolf DebelakKim FligelstoneAnn Tyrrell KennedyAnnelise RoennowYannick AllanorePatricia E CarreiraLászló CzirjákChristopher P DentonRoger HesselstrandGunnel SandqvistOtylia Kowal-BieleckaCosimo BruniMarco Matucci CerinicCarmen-Marina MihaiAna Maria GheorghiuUlf Mueller-LadnerJoseph SextonTore K KvienTurid HeibergOliver DistlerPublished in: Annals of the rheumatic diseases (2021)
We have developed and validated the EULAR ScleroID, which is a novel, brief, disease-specific, patient-derived, disease impact PROM, suitable for research and clinical use in SSc.