Validation of novel patient-centred juvenile idiopathic arthritis-specific patient-reported outcome and experience measures (PROMs/PREMs).

Laura E LuntStephanie Shoop-WorrallNicola SmithGavin ClearyJanet McDonaghAndrew D SmithWendy ThomsonFlora McErlane

Published in: Pediatric rheumatology online journal (2020)

The CAPTURE-JIA PROM and PREM are valid and feasible in UK paediatric rheumatology clinics. Embedding routine collection into clinical care would be a major step towards improving quality of care.

Keyphrases

juvenile idiopathic arthritis
patient reported outcomes
quality improvement
healthcare
palliative care
disease activity
primary care
intensive care unit
emergency department
affordable care act
case report
pain management
clinical practice
cross sectional
chronic pain
health insurance