Patient perspectives on digital healthcare technology in care and clinical trials for motor neuron disease: an international survey.
Jochem HellemanBarbara JohnsonCory HoldomEsther HobsonDeirdre MurrayFrederik J SteynShyuan T NgoAnjali HendersMadhura B LokeshappaJohanna M A Visser-MeilyLeonard H van den BergOrla HardimanAnita BeelenChris McDermottRuben P A van EijkPublished in: Journal of neurology (2022)
Most patients with MND exhibited a positive attitude toward the use of digital technology in both care and clinical trial settings. A subgroup of patients reported concerns with home-monitoring, which should be addressed in order to improve widespread adoption of remote digital technology in clinical MND care.
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