A Qualitative Exploration of the Needs of Community-Dwelling Patients Living with Moderate Dementia.
Tzu-Pei YehHsing-Chia ChenWei-Fen MaPublished in: International journal of environmental research and public health (2021)
Few studies have focused on developing a better understanding of the needs of patients with moderate-stage dementia. This study aimed to explore the needs of people living with moderate dementia and receiving home-care services from a local mental hospital. The study adopted a descriptive qualitative approach with purposive sampling to recruit patients with moderate dementia and receiving home-care services. Data were collected by face-to-face interviews and content analysis was used to interpret the experiences in the dialogue data. The results showed that the needs of people living with moderate dementia receiving home-care services contained four themes: the demand for company and care, the wish to recall familiar images, the need of reaffirming life purpose and value through reflection and reminiscence, and the desire for making autonomous end-of-life decisions. In addition to daily care, people living with moderate dementia crave companionship, expect meaningful exchanges of experiences to share their life, and have demands to have a voice in going through the final stage of life. The participants tended to focus more on issues related to the connections between living and dying. The results provide caregivers and home-care service providers with some insights into offering better care for people living with moderate dementia.
Keyphrases
- mild cognitive impairment
- healthcare
- cognitive impairment
- high intensity
- mental health
- palliative care
- primary care
- end stage renal disease
- chronic kidney disease
- quality improvement
- community dwelling
- systematic review
- electronic health record
- emergency department
- newly diagnosed
- prognostic factors
- big data
- cross sectional
- ejection fraction
- convolutional neural network
- physical activity
- patient reported outcomes