Patient lead users experience of the COVID-19 pandemic: a qualitative interview study.
Hanna JanssonTerese StenforsSara RiggareHenna HassonMaria ReiniusPublished in: BMJ open (2022)
Patient lead users can be seen as an emerging community of practice, and as such could be a valuable resource as a complementary communication channel for an improved health system. The health systems were not able to fully acknowledge and engage with the resource of patient lead users during the pandemic.