The value-based healthcare approach to haemophilia: Development of outcome measures for the evaluation of care of people with haemophilia.
Paolo Angelo CortesiCarla FornariSara ContiBerardino PollioElena BoccalandroAndrea BuzziChristian CarulliAntonio CoppolaRaimondo De CristofaroMatteo Nicola Dario Di MinnoGerard DolanEnrico Ferri GrazziArianna FornariRoberta GualtierottiCedric HermansVictor Jimenez YusteTami LivnatAngelo LupiCarlo MartinoliMaria Francesca MansuetoGabriella NicolòAnnarita TagliaferriAlessandro GringeriAngelo Claudio MolinariLorenzo Giovanni MantovaniGiancarlo Castamannull nullPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2024)
The presented standard set of health outcome indicators provides the basis for harmonised longitudinal and cross-sectional monitoring and comparison. The implementation of this value-based approach would enable a more robust assessment of quality of care in haemophilia, within a framework of continuous treatment improvements with potential added value for patients. Moreover, proposed COIs and PROIs should be reviewed and updated routinely.
Keyphrases
- healthcare
- cross sectional
- quality improvement
- end stage renal disease
- palliative care
- newly diagnosed
- ejection fraction
- chronic kidney disease
- public health
- primary care
- peritoneal dialysis
- prognostic factors
- affordable care act
- mental health
- health information
- pain management
- patient reported outcomes
- combination therapy
- chronic pain