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Long Covid active case finding study protocol: A co-produced community-based pilot within the STIMULATE-ICP study (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways).

Nisreen A AlwanDonna ClutterbuckMarija PantelicJasmine HayerLere FisherLyth HishmehMelissa HeightmanGail AllsoppDan WoottonAsad KhanClaire HastieMonique JacksonClare RaynerDarren A BrownEmily ParrettGeraint JonesKerry SmithRowan ClarkeSammie McfarlandMark GabbayAmitava Banerjeenull null
Published in: PloS one (2023)
This protocol and study materials were co-produced with a Community Advisory Board (CAB) made up primarily of people living with Long Covid. Working with voluntary organisations, a study leaflet will be distributed in the local community to highlight Long Covid symptoms and invite those experiencing them to participate in the study if they are not formally diagnosed. Potential participants will be assessed according to the study's inclusion criteria and offered the opportunity to participate if they fit them. Awareness of Long Covid and associated symptoms, experiences of trying to access care, as well as stigma and discrimination will be explored through qualitative interviews with participants. Upon completion of the interviews, participants will be offered a referral to the local social prescribing team to receive support that is personalised to them potentially including, but not restricted to, liaising with their primary care provider and the regional Long Covid clinic.
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