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Parents' experiences of their child's transition from tube to oral feeding during an intensive intervention program.

Emily J LivelySue McallisterSebastian H Doeltgen
Published in: Child: care, health and development (2022)
Parenting a tube fed child, initiating and engaging in tube weaning is a stressful and emotional journey. However, by establishing care partnerships, parents are willing to put trust in a process if provided with options, afforded autonomy, empowerment, acknowledgement and relevant support.
Keyphrases
  • mental health
  • quality improvement
  • healthcare
  • randomized controlled trial
  • palliative care
  • affordable care act
  • social media
  • acute respiratory distress syndrome
  • extracorporeal membrane oxygenation