A tailored intervention for illness acceptance improves adherence and quality of life in adults with haemophilia using prophylaxis.
Johanna Wilhelmina HoefnagelsKathelijn FischerRuud A T BosMariette H E DriessensLiesbeth H SchrijversPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2021)
The tailored group intervention resulted in significant improvement of adherence, quality of life and illness perception. Based on our current experience, we have implemented it in clinical practice and collaborate with the patient association to make it available for all Dutch people with haemophilia.