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Epidemiology of systemic sclerosis in the UK: an analysis of the Clinical Practice Research Datalink.

John D PaulingAnita McGroganJulia SnowballNeil J McHugh
Published in: Rheumatology (Oxford, England) (2021)
We have developed and tested a robust case ascertainment strategy to examine the incidence, prevalence, mortality and diagnostic delay of SSc using primary care records of over 10 million UK residents. A significant lag between coding of RP and SSc in many patients suggests diagnostic delay in SSc remains an important unmet need.
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