Exploring knowledge and perceptions of palliative care to inform integration of palliative care education into cystic fibrosis care.
Elisabeth P DellonSarah W HelmsClaire E HaileyRosemary ShayScott D CarneyHoward Joel SchmidtDavid E BrownMary G PrieurPublished in: Pediatric pulmonology (2018)
In this single center study, many patients with CF, caregivers, and providers lacked knowledge about palliative care. These findings warrant replication in a larger, multisite study to inform palliative care educational interventions as a step toward consistent integration of palliative care into routine CF care.