Implementation of a Pilot Clinic for Pediatric to Adult Cancer Survivorship Transitions.
Alexander Hai JinPamela J SimonAlison ClaytonCatherine BenedictMichaela LiedtkeLori S MufflyLidia SchapiraStephanie M SmithPublished in: Journal of adolescent and young adult oncology (2023)
Childhood cancer survivors are recommended to have lifelong survivorship care, yet many become disengaged during pediatric to adult care transitions. We implemented a pilot clinic for adult survivors of pediatric or adolescent and young adult (AYA) leukemia transitioning to adult-focused survivorship care. The clinic featured AYA-specific care, bidirectional communication with primary care, and a quality improvement (QI) cycle. During the 1-year QI period, 27 patients were seen and 21 completed postvisit interviews. The clinic was positively received by patients and primary care providers, showed promise for improving self-management and care coordination, and highlighted the need for novel approaches to connect survivors with primary care.
Keyphrases
- childhood cancer
- primary care
- young adults
- healthcare
- palliative care
- quality improvement
- end stage renal disease
- ejection fraction
- newly diagnosed
- chronic kidney disease
- affordable care act
- general practice
- randomized controlled trial
- pain management
- bone marrow
- prognostic factors
- squamous cell carcinoma
- chronic pain
- health insurance
- big data
- lymph node metastasis
- double blind