Trends in quality of care and dying perceived by family caregivers of nursing home residents with dementia 2005-2019.
Maartje S KlapwijkSascha R BoltJannie A BoogaardMaud Ten KoppelMarie-José He GijsbertsCarolien van LeussenB Anne-Mei TheJudith Mm MeijersJos Mga ScholsH Roeline W PasmanBregje D Onwuteaka-PhilipsenLuc DeliensLieve Van den BlockBart MertensHenrica Cw de VetMonique Aa CaljouwWilco P AchterbergJenny T van der SteenPublished in: Palliative medicine (2021)
We identified divergent trends over 14 years of increased quality of care, while quality of dying did not increase and well-being in dying decreased. Further research is needed on what well-being in dying means to family. Quality improvement requires continued efforts to treat symptoms in dying with dementia.