Understanding the need for assistance with survey completion in people with Huntington disease.
Elizabeth A HahnNancy R DowningJulie C StoutJane S PaulsenBecky ReadySiera GoodnightJin-Shei LaiJennifer A MinerNoelle E CarlozziPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2017)
Computer-based assessments are feasible for many persons with HD, although other methods may also be needed. Clinicians and researchers should develop strategies to assist people with HD to complete HRQOL surveys.