Login / Signup

The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review.

Beth A DeHoffLisa K StatenRylin Christine RodgersScott C Denne
Published in: Journal of medical Internet research (2016)
Parents of young CSHCN experience significant stress but gain understanding, receive support, and develop the ability to care for and be advocates for their child through parent-to-parent emotional and informational social support. Online social support is most effective with young adults of childbearing age, with social media and apps being the most useful within the theoretical framework of social support. This opens new opportunities to effectively educate and support parents of young CSHCN. Providers seeking to inform, educate, and support families of CSHCN should develop strategies to help parents find and use social support through digital resources to facilitate their emotional adjustment and practical abilities to care for and access services for their child.
Keyphrases
  • social support
  • social media
  • healthcare
  • depressive symptoms
  • health information
  • mental health
  • young adults
  • palliative care
  • affordable care act
  • quality improvement