Acceptability of opt-out consent in a hospital patient population.
Daniel BoulosEric MorandMichelle FooJanki Dhaval TrivediRuth LaiRachel HuntersmithKaren ZhangClaire Brigid StarkSuong T T LePublished in: Internal medicine journal (2018)
Research has been slow to leverage digitalised medical records as a data resource. Our study assessed patient acceptability of opt-out consent for secondary use of digital patient data. A questionnaire was distributed to patients in multiple languages and with an interpreter. Of 919 completed surveys, 33% were of non-English speaking background, 15% self-reported cognitive impairment and 3% were refugees. Opt-out consent was accepted in this diverse population; 87% of participants approved, or were indifferent to opt-out consent. Gender, employment and cognition status were not significant determinants of acceptability.
Keyphrases
- case report
- cognitive impairment
- end stage renal disease
- healthcare
- cross sectional
- electronic health record
- ejection fraction
- newly diagnosed
- chronic kidney disease
- mental health
- mild cognitive impairment
- peritoneal dialysis
- prognostic factors
- patient reported
- machine learning
- patient reported outcomes
- acute care
- artificial intelligence