Caveats and pitfalls associated with researching community engagement in the context of HIV vaccine trials.
Ashraf KageeAnneliese De WetZuhayr KafaarAnthea LeschLeslie SwartzPeter A NewmanPublished in: Journal of health psychology (2017)
HIV vaccine efficacy trials require the enrolment of large numbers of HIV-negative individuals and thus it is necessary to engage with communities where HIV incidence is high. We identify some of the caveats and pitfalls associated with researching community engagement in the context of HIV vaccine trials. These are as follows: the lack of consensus of what community engagement is and how it is practiced, the sometimes paradoxical role of community advisory boards as community representatives and challenges associated with information dissemination in communities. We identify a set of considerations for community engagement practitioners, trial investigators and social scientists when conducting community engagement.
Keyphrases
- antiretroviral therapy
- mental health
- hiv positive
- healthcare
- hiv infected
- hiv testing
- human immunodeficiency virus
- hepatitis c virus
- social media
- hiv aids
- men who have sex with men
- primary care
- clinical trial
- south africa
- risk factors
- randomized controlled trial
- health insurance
- health information
- open label
- phase ii
- phase iii