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The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network: Perspectives of researchers and patient partners.

Meghan J ElliottTamara Lynne McCarronKara Schick-MakaroffLeah GetchellBraden MannsNicolas Fernandez
Published in: Health expectations : an international journal of public participation in health care and health policy (2023)
This project was conceived in collaboration with a Can-SOLVE CKD patient partner (N. F.), with lived experience of kidney failure. He also co-designed the study's protocol, led focus groups and researcher interviews, and contributed to data analysis. L. G. has lived experience as a caregiver for a person with CKD and facilitated patient partner focus groups. The patient partners, both of whom are listed authors, provided important insights that shaped our interpretation and presentation of study findings.
Keyphrases
  • case report
  • data analysis
  • chronic kidney disease
  • randomized controlled trial
  • hepatitis c virus
  • network analysis