Current Challenges of Using Patient-Level Claims and Electronic Health Record Data for the Longitudinal Evaluation of Duchenne Muscular Dystrophy Outcomes.
Katherine L GoochIvana AudhyaKristen Ricchetti-MastersonShelagh M SzaboPublished in: Advances in therapy (2024)
Insurance claims and EHR-linked open claims data are of limited utility for holistically evaluating the progression and burden of DMD in individual patients.
Keyphrases
- electronic health record
- duchenne muscular dystrophy
- health insurance
- clinical decision support
- end stage renal disease
- adverse drug
- ejection fraction
- newly diagnosed
- chronic kidney disease
- muscular dystrophy
- prognostic factors
- minimally invasive
- adipose tissue
- peritoneal dialysis
- type diabetes
- big data
- metabolic syndrome
- cross sectional
- machine learning
- patient reported outcomes
- insulin resistance
- long term care