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Implementation of the MiNDToolkit intervention for the management of behavioral symptoms in MND by healthcare professionals: a mixed-methods process evaluation.

T Katangwe-ChigambaE FlanaganEneida Mioshi
Published in: Amyotrophic lateral sclerosis & frontotemporal degeneration (2024)
Implementation of the MiNDToolkit was viewed to be feasible and the platform thought to increase accessibility of support to carers. The flexible approach to delivery (online platform and optional HCP reinforcement) is acceptable as an intervention for supporting carers of PlwMND with behavioral symptoms. However, MiNDToolkit should not negate HCP involvement in providing medical and practical information to PlwMND and families. Future research should explore ways to incorporate support for carers in the management of PlwMND alongside standard care, alongside tools such as the MiNDToolkit.
Keyphrases
  • healthcare
  • randomized controlled trial
  • quality improvement
  • primary care
  • health information
  • palliative care
  • social media
  • sleep quality
  • physical activity
  • depressive symptoms