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Linking genetic counseling communication skills to patient outcomes and experiences using a community-engagement and provider-engagement approach: research protocol for the GC-PRO mixed methods sequential explanatory study.

Elena R FisherDeborah CragunRobert F DedrickCrystal Y LumpkinsMariana RamírezKimberly A KaphingstAshley PetersenIan M MacFarlaneKrista Redlinger-GrosseAbdirashid ShireKathleen A Culhane-PeraHeather A Zierhut
Published in: BMJ open (2024)
This study has been approved by the single Institutional Review Board of the University of Minnesota. This research poses no greater than minimal risk to participants. Results from this study will be shared through national and international conferences and through community-based dissemination as guided by the study's CABs. A lay summary will also be disseminated to all participants.
Keyphrases
  • randomized controlled trial
  • social media
  • mass spectrometry
  • quality improvement
  • human immunodeficiency virus
  • study protocol
  • copy number