Supporting Stewardship: Funding, Utilization, and Sustainability as Ethical Concerns in Networked Biobanking.
Rosemary Jean CadiganRoselle PonsaranCarla RichJosie TimmonsKyle Bertram BrothersAaron J GoldenbergPublished in: AJOB empirical bioethics (2024)
The results presented here support inclusion of funding, utilization, and sustainability as topics of ethical concern in the practice of biobanking and networked biobanking. These issues are rooted in the stewardship obligations that biobankers feel to their partners, client investigators, and participants. The goal of promoting stewardship through networking requires significant time and effort to build governance models that honor the obligations of each individual biobank to their donors and advance the collective goals of the network. We conclude with suggestions offered by respondents to address improving these aspects of stewardship.