The Rossy Progressive Supranuclear Palsy Centre: Creation and Initial Experience.
Blas CoutoSusan FoxMaria Carmela TartagliaEkaterina RogaevaJeffrey AntwiPuja BhaktaGábor G KovácsAnthony E LangPublished in: The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques (2023)
The Rossy PSP Centre has been established to advance clinical and basic research in PSP and related tauopathies. The extent of the clinical data collected permits deep phenotyping of patients and allows for future clinical and basic research. Preliminary results showed expected distribution of phenotypes, demographics, and response to symptomatic treatments in our cohort. Longitudinal data will provide insight into the early diagnosis and management of PSP. Future steps include enrollment of patients in earlier stages, development of biomarkers, and fast-tracking well-characterized patients into clinical trials.