Development of a consensus core dataset in juvenile dermatomyositis for clinical use to inform research.
Liza J McCannClarissa A PilkingtonAdam M HuberAngelo RavelliDuncan AppelbeJamie J KirkhamPaula R WilliamsonAmita AggarwalLisa Christopher-StineTamas ConstantinBrian M FeldmanIngrid LundbergSue MaillardPernille MathiesenRuth MurphyLauren M PachmanAnn M ReedLisa G RiderAnnet van Royen-KerkofRicardo RussoStefan SpintyLucy R WedderburnMichael William BeresfordPublished in: Annals of the rheumatic diseases (2017)
Through a robust international process, a consensus dataset for JDM has been formulated that can capture disease activity and damage over time. This dataset can be incorporated into national and international collaborative efforts, including existing clinical research databases.