The Lived Experience of a Newly Diagnosed Older Person With HIV in Ukraine.
Amy AllenIrina ZaviryukhaTetiana KiriazovaSheela ShenoiJulia RozanovaPublished in: Qualitative health research (2021)
Low- and middle-income countries are home to 80% of older people with HIV (OPWH). Ukrainian OPWH experience higher mortality and decreased antiretroviral therapy (ART) initiation than younger patients, but there is little data examining OPWH's perspectives around new diagnosis and impact on care. In this study, we examined accounts of 30 newly diagnosed OPWH in Ukraine, exploring challenges faced in the peri-diagnosis period. Themes emerged representing the longitudinal coping process: OPWH (1) viewed themselves as low risk before diagnosis; (2) experienced HIV diagnosis as a traumatic event challenging their self-image; (3) used disclosure to seek support among a small circle of family, friends, or health care providers; (4) avoided disclosure to outsiders including primary care providers for fears of stigma and breaches in confidentiality; (5) viewed age as an asset; and (6) used HIV diagnosis as starting point for growth. These findings highlight the need for age-specific programming to increase HIV knowledge and coping, increase screening, and improve long-term planning.
Keyphrases
- antiretroviral therapy
- hiv infected
- newly diagnosed
- hiv positive
- hiv aids
- human immunodeficiency virus
- healthcare
- hiv infected patients
- hiv testing
- primary care
- men who have sex with men
- hepatitis c virus
- social support
- end stage renal disease
- deep learning
- depressive symptoms
- social media
- spinal cord injury
- mental health
- palliative care
- type diabetes
- community dwelling
- cardiovascular events
- big data
- prognostic factors
- general practice
- electronic health record
- health information
- quality improvement