Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership.
Tiffany Dal SantoMeira GolbergElsa-Lynn NassarMarie-Eve CarrierSophie HuLinda KwakkenbosSusan J BartlettRina S FoxYvonne C LeeJohn VargaAndrea BenedettiBrett D Thombsnull nullPublished in: BMC rheumatology (2024)
Once completed, our pain assessment tool will allow our team and other researchers to map sources of pain in SSc and to understand pain management experiences of people living with SSc. This knowledge will provide avenues for studies on the pathophysiology of pain in SSc and studies of interventions to improve pain management.