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The ethics conundrum in Recall by Genotype (RbG) research: Perspectives from birth cohort participants.

Joel T MinionFrances ButcherNicholas TimpsonMadeleine J Murtagh
Published in: PloS one (2018)
Our findings highlight the responsibility and duty of care on RbG researchers, and longitudinal studies more generally, and the importance of solidarity, reciprocity and co-production in study-participant relations. As such, we consider existing recommendations for conducting RbG research in longitudinal studies in light of our results and speak to recent changes in the approach used by ALSPAC.
Keyphrases
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