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Promoting informed approaches in precision oncology and clinical trial participation for Black patients with cancer: Community-engaged development and pilot testing of a digital intervention.

Jinghua AnJeanne M FerranteMyneka MacenatShridar GanesanShawna V HudsonCoral OmeneHarold GarciaAnita Y Kinney
Published in: Cancer (2023)
We developed a digital interactive decision support tool for Black patients with cancer by convening a Community Advisory Board and conducting interviews with Black patients with cancer, their relatives, and providers. We then pilot-tested the intervention with newly diagnosed Black patients with cancer and found appreciable improvement in participants' knowledge about precision oncology, knowledge about clinical trials, and confidence in making decisions for targeted/immune therapy. Our digital tool has great potential to be an affordable and scalable solution for empowering and educating Black patients with cancer to help them make informed decisions about precision oncology and clinical trials and ultimately reducing racial disparities.
Keyphrases
  • clinical trial
  • healthcare
  • palliative care
  • randomized controlled trial
  • newly diagnosed
  • study protocol
  • mental health
  • phase ii
  • double blind
  • drug delivery
  • cancer therapy
  • bone marrow
  • health insurance