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Living with facioscapulohumeral muscular dystrophy during the first two COVID-19 outbreaks: a repeated patient survey in the Netherlands.

Johanna C W DeenenJoost KoolsAnna GrecoRenée ThewissenWiecke van de PutAnke LanserLeo A B JoostenAndre L M VerbeekBaziel G M van EngelenNicol C Voermans
Published in: Acta neurologica Belgica (2024)
The COVID-19 pandemic negatively impacted care received and increased perceived psychosocial stress in FSHD patients. However, COVID-19 infection incidence in FSHD patients was similar to their non-FSHD housemates.
Keyphrases
  • muscular dystrophy
  • newly diagnosed
  • ejection fraction
  • prognostic factors
  • palliative care
  • physical activity
  • patient reported outcomes
  • social support
  • chronic pain
  • infectious diseases